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Latest page update: made by ForestForTreesTMS
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| Started By | Thread Subject | Replies | Last Post | ||
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| pandamonium09 | I'm feeling uncomfortable | 16 | Feb 23 2009, 6:28 PM EST by ForestForTreesTMS | ||
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Thread started: Jan 23 2009, 5:17 AM EST
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Hi redsandro,
I am not sure what other people think but I don't really like using the word psychsomatic for TMS. For me this conjours up the idea that the pain you are feeling is not real, that it is all in your head, whereas we all know that the pain is very real but has an emotional cause, it's a subtle difference that can have huge implications. Most people (in the UK at least) find the use of the word quite offensive. I wouldn't use that word, especially on the first few pages. What does everyone else think?
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| pandamonium09 | My story | 0 | Jan 24 2009, 3:53 PM EST by pandamonium09 | ||
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Thread started: Jan 24 2009, 3:53 PM EST
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I re-wrote my story for a non TMS audience, you can find it here and if you can use any of it then feel free http://www.painconcern.org.uk/discuss/viewtopic.php?f=4&t=40
I agree it's a hard topic but probably one of the most important ones. I think many people would recognise that if they think about a symptom, it can bring on that symptom, I realised this way before my TMS was diagnosed but it didn't account for those times when I was walking along pain free thinking about "other stuff" and then was crippled by sudden and severe pain. I think another useful thing is to emphasise how the mind and the body are so entwined that emotions can bring on physical responses. Most people would understand that: fear = a faster heartbeat, upset tummy embarassment/shame = blushing panic = sweating and nausea sadness = crying and heart ache Acknowledging all of this is a *very* important "baby step" to understanding that mind-body illnesses are real. my tuppance worth P |
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| ForestForTreesTMS | Using the 20/20 video | 4 | Jan 24 2009, 12:40 PM EST by ForestForTreesTMS | ||
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Thread started: Jan 24 2009, 12:19 AM EST
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I like the idea of using the 20/20 segment as a way to introduce TMS. We could embed the video at the top of the page and invite people to watch it.
Some reasons why: 1.) Other people have found it helpful. For example, Kelvin Gunnell writes at the top of his web page on TMS, "Many people also find this short video from ABC’s News program “20/20” very helpful in explaining TMS" 2.) I tend to be extremely skeptical when I visit websites that offer miracle cures (and we are offering a miracle cure). One can easily see from the news program that it is a broadcast news program and that it therefore is held to some sort of standard for journalistic integrity. 3.) Only 70% of our visitors are from the US, but for them, 20/20 and abc news are fairly trustworthy sources. Some people may feel that they have a slight liberal bias, but 20/20 is one of the big US news programs 4.) It has video. I think that video is very powerful. 5.) Results are what most people care about, and the program has MANY success stories. They did a survey of 20 patients and "all 20 patients said that they were better or much better." It also followed several people through the program and showed how their lives had been transformed. You can watch them say it, which I think is very powerful. One says, "It gave me my life back." Finally, the narrator even says, that Dr. Sarno cured 20 years of back pain. It even shows anger at conventional treatments. 6.) The program admits that there are skeptics. I think that they need to know this. They will find out about it eventually, so if we have the courage to say it, in only ads to our credibility. 7.) It even has celebrity endorsements (which work) It's not perfect, but its quite good. What do you think? |
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